Comments for Transnational Online Debate http://www.livingknowledge.org/discussion/diskutiere This transnational Knowledge Debate serves as a way to articulate research requests from civil society organisations (CSOs) all over Europe and submit these requests to the collective research capacity of all LK members and beyond. This tool has been initiated by members of a European consortium, Public Engagement with Research and Research Engagement with Society (PERARES). The consortium’s members represent universities, civil society organisations and science shops that carry out collaborative research with civil society organisations. Sun, 19 May 2013 18:19:17 +0000 http://wordpress.org/?v=2.7.1 hourly 1 Comment on Code of conduct for research with and for the Roma people by Norbert http://www.livingknowledge.org/discussion/diskutiere/2012/code-of-conduct-for-the-research-with-and-for-the-roma-people/comment-page-1/#comment-485 Norbert Tue, 09 Apr 2013 10:15:12 +0000 http://www.livingknowledge.org/discussion/diskutiere/?p=42555#comment-485 I would like to draw your attention to Deutsche Welle (German international broadcaster) which produces a special themes publications for different countries in national languages. One of their recent foci was on Roma. http://www.dw.de/kampf-gegen-anti-roma-hetze/a-16654504 (in German) or http://www.dw.de/de-d%C3%B3nde-vienen-los-gitanos/a-16452701 (in Spanish) or http://www.dw.de/romii-din-estul-europei-platesc-cu-viata-pentru-criza-economica/a-4217151 (in Romanian) A good opportunity to disseminate outcomes of this debate. I would like to draw your attention to Deutsche Welle (German international broadcaster) which produces a special themes publications for different countries in national languages.

One of their recent foci was on Roma.
http://www.dw.de/kampf-gegen-anti-roma-hetze/a-16654504 (in German)
or http://www.dw.de/de-d%C3%B3nde-vienen-los-gitanos/a-16452701 (in Spanish)
or http://www.dw.de/romii-din-estul-europei-platesc-cu-viata-pentru-criza-economica/a-4217151 (in Romanian)

A good opportunity to disseminate outcomes of this debate.

]]> Comment on Code of conduct for research with and for the Roma people by Ruus Dijksterhuis http://www.livingknowledge.org/discussion/diskutiere/2012/code-of-conduct-for-the-research-with-and-for-the-roma-people/comment-page-1/#comment-479 Ruus Dijksterhuis Thu, 31 Jan 2013 12:53:39 +0000 http://www.livingknowledge.org/discussion/diskutiere/?p=42555#comment-479 This is a very relevant debate: how can research done in such a way that grassroots Roma and Roma NGOs can benefit better from the findings while building their capacity. In general, research is primarily focussing on statistical fact-finding and generating statistical data, to monitor policies targeting Roma. Roma and Roma organisations are hardly involved and often cannot benefit from the research findings. Many stakeholders have difficulties to claim that they have developed an approach that creates long-lasting changes in the inclusion of Roma. There are hardly any evidence based models that can be up-scaled and implemented as a policy measure. As a matter of fact, policy mechanisms in the field of education, housing and employment can only be designed if the complex factors leading to social exclusion (like anti-Gypsyism, lack of political will, low capacities and involvement of Roma) are acknowledged. A more experimental, learning by doing approach needs to be in place, that helps to identify and describe methodologies in a local, situational context. Action research and community research methodologies have proven to be a good method for identifying incentives for change. ERGO network wants to further invest in participatory research approaches. We would like to invite all academics involved in PAR research in Roma communities to share their findings and experiences, so we can invest in building a network and gain recognition. Ruus Dijksterhuis, ERGO Network This is a very relevant debate: how can research done in such a way that grassroots Roma and Roma NGOs can benefit better from the findings while building their capacity.
In general, research is primarily focussing on statistical fact-finding and generating statistical data, to monitor policies targeting Roma. Roma and Roma organisations are hardly involved and often cannot benefit from the research findings.
Many stakeholders have difficulties to claim that they have developed an approach that creates long-lasting changes in the inclusion of Roma. There are hardly any evidence based models that can be up-scaled and implemented as a policy measure. As a matter of fact, policy mechanisms in the field of education, housing and employment can only be designed if the complex factors leading to social exclusion (like anti-Gypsyism, lack of political will, low capacities and involvement of Roma) are acknowledged. A more experimental, learning by doing approach needs to be in place, that helps to identify and describe methodologies in a local, situational context. Action research and community research methodologies have proven to be a good method for identifying incentives for change.
ERGO network wants to further invest in participatory research approaches. We would like to invite all academics involved in PAR research in Roma communities to share their findings and experiences, so we can invest in building a network and gain recognition.
Ruus Dijksterhuis, ERGO Network

]]> Comment on Code of conduct for research with and for the Roma people by Sonakay Association (Reus, Spain) http://www.livingknowledge.org/discussion/diskutiere/2012/code-of-conduct-for-the-research-with-and-for-the-roma-people/comment-page-1/#comment-478 Sonakay Association (Reus, Spain) Sat, 26 Jan 2013 18:11:45 +0000 http://www.livingknowledge.org/discussion/diskutiere/?p=42555#comment-478 As members of the Sonakay Association (an association of Roma people), we are agree with Fernando Macías when he explains the need of this type of codes as they generate social and political impact by incorporating the voices of Roma people. As an association of Roma people, we have confirmed that the application of codes like this, who make public the premise of incorporation of our voices in the research process (the voices of the Roma people), generates a greater social impact, contributing to break stereotypes, overcoming situations of social exclusion and, ultimately, transforming many Roma people lives. As members of the Sonakay Association (an association of Roma people), we are agree with Fernando Macías when he explains the need of this type of codes as they generate social and political impact by incorporating the voices of Roma people.

As an association of Roma people, we have confirmed that the application of codes like this, who make public the premise of incorporation of our voices in the research process (the voices of the Roma people), generates a greater social impact, contributing to break stereotypes, overcoming situations of social exclusion and, ultimately, transforming many Roma people lives.

]]> Comment on Code of conduct for research with and for the Roma people by Fernando Macías http://www.livingknowledge.org/discussion/diskutiere/2012/code-of-conduct-for-the-research-with-and-for-the-roma-people/comment-page-1/#comment-477 Fernando Macías Wed, 09 Jan 2013 11:25:49 +0000 http://www.livingknowledge.org/discussion/diskutiere/?p=42555#comment-477 Research about Roma people, as explained above, has been used many times to justify and perpetuate the social exclusion of Roma. I greatly welcome the creation of this ethical code of professional behaviour because a number of reasons. Using it makes more feasible a greater social and political impact of the studies, since all of them will cover the real needs of Roma people, not just researchers' requirements. It is appropriated and necessary to create an ethical code of professional behaviour (a code of conduct) to deal with specific topics. If concrete policies or practices would not exist, it would also be impossible to overcome social misbehaviours like sexim, racism, or any other kind of discrimination, such as anti-gypsyism. All researches should be framed by an ethical code; in the field of Roma people studies, the topics addressed by this ethical code are very appropriated. Finally, I would like to notice that this ethical code has been implemented in many researches funded by the Framework Program of the EU. These researchers have produced a great social and political impact. In addition this ethical code has been developed following the recommendations of the European Charter for researchers and the code of conduct for the recruitment of researchers adopted by the European Commission on 11th March 2005. Research about Roma people, as explained above, has been used many times to justify and perpetuate the social exclusion of Roma. I greatly welcome the creation of this ethical code of professional behaviour because a number of reasons.

Using it makes more feasible a greater social and political impact of the studies, since all of them will cover the real needs of Roma people, not just researchers’ requirements.

It is appropriated and necessary to create an ethical code of professional behaviour (a code of conduct) to deal with specific topics. If concrete policies or practices would not exist, it would also be impossible to overcome social misbehaviours like sexim, racism, or any other kind of discrimination, such as anti-gypsyism.
All researches should be framed by an ethical code; in the field of Roma people studies, the topics addressed by this ethical code are very appropriated.

Finally, I would like to notice that this ethical code has been implemented in many researches funded by the Framework Program of the EU. These researchers have produced a great social and political impact. In addition this ethical code has been developed following the recommendations of the European Charter for researchers and the code of conduct for the recruitment of researchers adopted by the European Commission on 11th March 2005.

]]> Comment on Code of conduct for research with and for the Roma people by Carme Garcia http://www.livingknowledge.org/discussion/diskutiere/2012/code-of-conduct-for-the-research-with-and-for-the-roma-people/comment-page-1/#comment-476 Carme Garcia Wed, 19 Dec 2012 21:43:40 +0000 http://www.livingknowledge.org/discussion/diskutiere/?p=42555#comment-476 It’s necessary that all research on issues Roma people makes use of this code of conduct. The use of ethical codes is specially important for a quality research and commitment to science, above all the research that affects people, whether in biomedicine or in social or behavioral. So much so, there are some countries where research involving people requires regulatory processes for Protecting Human Research Subjects. This is the case of codes as 45 Code of Federal Regulations Part 46 of the U.S. Department of Health & Human Services. View: http://www.hhs.gov/ohrp/humansubjects/guidance/45cfr46.html. Similarly, prestigious universities as Harvard University have specific committees that control the research involving humans. For example, the CUHS (Committee on the Use of Human Subjects in Research) of the Faculty of Arts and Sciences at the Harvard University, which has the function of reviewing and deciding whether or not to approve research involving human beings and intervene if necessary. Finally, we have to note that it is essential to use these codes to not cause any prejudice to the people who participate in research. Also, to secure that the instruments used in these studies accomplish ethical criteria and are guaranteed by experts to work with human beings. It’s necessary that all research on issues Roma people makes use of this code of conduct. The use of ethical codes is specially important for a quality research and commitment to science, above all the research that affects people, whether in biomedicine or in social or behavioral. So much so, there are some countries where research involving people requires regulatory processes for Protecting Human Research Subjects. This is the case of codes as 45 Code of Federal Regulations Part 46 of the U.S. Department of Health & Human Services. View: http://www.hhs.gov/ohrp/humansubjects/guidance/45cfr46.html. Similarly, prestigious universities as Harvard University have specific committees that control the research involving humans. For example, the CUHS (Committee on the Use of Human Subjects in Research) of the Faculty of Arts and Sciences at the Harvard University, which has the function of reviewing and deciding whether or not to approve research involving human beings and intervene if necessary. Finally, we have to note that it is essential to use these codes to not cause any prejudice to the people who participate in research. Also, to secure that the instruments used in these studies accomplish ethical criteria and are guaranteed by experts to work with human beings.

]]> Comment on Code of conduct for research with and for the Roma people by Noemí Martín http://www.livingknowledge.org/discussion/diskutiere/2012/code-of-conduct-for-the-research-with-and-for-the-roma-people/comment-page-1/#comment-474 Noemí Martín Tue, 04 Dec 2012 08:31:29 +0000 http://www.livingknowledge.org/discussion/diskutiere/?p=42555#comment-474 Hi, I find very interesting the development of this code of conduct and I believe that all research on Roma people's issues should make use of this. Specifically, this particular code is extremely important as it responds to a particular group (Roma people) who has so far been investigated not including their voices. Thus, there are 2 principles which are particularly important: Principle 6 “Affirmative action and multicultural research teams” and Principle 1 “Utility and Social Commitment”, because based on these principles the research is grounded on the egalitarian dialogue with the Roma civil society, based on an intersubjective construction of knowledge, and with the aim to respond to the needs and claims that the Roma people themselves demand. Hi,
I find very interesting the development of this code of conduct and I believe that all research on Roma people’s issues should make use of this. Specifically, this particular code is extremely important as it responds to a particular group (Roma people) who has so far been investigated not including their voices. Thus, there are 2 principles which are particularly important: Principle 6 “Affirmative action and multicultural research teams” and Principle 1 “Utility and Social Commitment”, because based on these principles the research is grounded on the egalitarian dialogue with the Roma civil society, based on an intersubjective construction of knowledge, and with the aim to respond to the needs and claims that the Roma people themselves demand.

]]> Comment on Code of conduct for research with and for the Roma people by Ronald Swain http://www.livingknowledge.org/discussion/diskutiere/2012/code-of-conduct-for-the-research-with-and-for-the-roma-people/comment-page-1/#comment-471 Ronald Swain Mon, 19 Nov 2012 09:49:16 +0000 http://www.livingknowledge.org/discussion/diskutiere/?p=42555#comment-471 I'd suggest that a specific code for a specific research area is not appropriate. All social research should be subject to an ethics code. See for example Section 8 and Appendix D of University College Cork’s Code of Research Conduct at http://www.ucc.ie/research/rio/ethics.html . Ronny. I’d suggest that a specific code for a specific research area is not appropriate. All social research should be subject to an ethics code. See for example Section 8 and Appendix D of University College Cork’s Code of Research Conduct at http://www.ucc.ie/research/rio/ethics.html . Ronny.

]]> Comment on Domestic violence by Nicky Buckley http://www.livingknowledge.org/discussion/diskutiere/2012/domestic-violence/comment-page-1/#comment-464 Nicky Buckley Thu, 30 Aug 2012 15:31:08 +0000 http://www.livingknowledge.org/discussion/diskutiere/?p=42486#comment-464 As a member of the group of universities within the PERARES consortium where researchers are investigating topics of domestic violence, I appreciate the time the visitors to this discussion have spent in posing questions and providing links to relevant research. This online discussion area will move on to a new topic in September, so this topic will close for new comments by the end of the month. The PERARES consortium members will share questions raised by civil society organisations in this discussion space with researchers and students at a number of European universities and research institutes. We will report back on research progress via this site and to the service providers, charities and civil society organisations who have asked questions. As a member of the group of universities within the PERARES consortium where researchers are investigating topics of domestic violence, I appreciate the time the visitors to this discussion have spent in posing questions and providing links to relevant research. This online discussion area will move on to a new topic in September, so this topic will close for new comments by the end of the month. The PERARES consortium members will share questions raised by civil society organisations in this discussion space with researchers and students at a number of European universities and research institutes. We will report back on research progress via this site and to the service providers, charities and civil society organisations who have asked questions.

]]> Comment on Domestic violence by Sabine Bohne http://www.livingknowledge.org/discussion/diskutiere/2012/domestic-violence/comment-page-1/#comment-469 Sabine Bohne Tue, 28 Aug 2012 08:21:42 +0000 http://www.livingknowledge.org/discussion/diskutiere/?p=42486#comment-469 Hello All, you might be interested in two articles concerning domestic violence and response of health care professionals: 1. Domestic violence and health care (Sabine Bohne) 2. Domestic violence against women: Health care needs and the S.I.G.N.A.L. Intervention Programme (Hildegard Hellbernd & Petra Brzank) see: http://www.uni-kassel.de/upress/online/frei/978-3-89958-740-1.volltext.frei.pdf (p.93ff) Regards Sabine Hello All,
you might be interested in two articles concerning domestic violence and response of health
care professionals:
1. Domestic violence and health care (Sabine Bohne)
2. Domestic violence against women: Health care needs and the S.I.G.N.A.L. Intervention
Programme (Hildegard Hellbernd & Petra Brzank)
see: http://www.uni-kassel.de/upress/online/frei/978-3-89958-740-1.volltext.frei.pdf (p.93ff)

Regards
Sabine

]]> Comment on Domestic violence by Caroline Bradbury-Jones http://www.livingknowledge.org/discussion/diskutiere/2012/domestic-violence/comment-page-1/#comment-468 Caroline Bradbury-Jones Mon, 27 Aug 2012 14:55:15 +0000 http://www.livingknowledge.org/discussion/diskutiere/?p=42486#comment-468 Hello All I am extremely interested in this area of research. I suggest a topic as one that continues to investigate the responses of healthcare professionals to domestic violence. Although there is a growing body of literature in this area, there is still a great deal that is not known. I am attaching a link to the report of a funded study that my colleagues and I from the University of Dundee, Scotland have recently completed. We are about to embark on another study funded by Wellbeing of Women that investigates the relationship between disability, domestic abuse and access to maternity healthcare. http://www.cso.scot.nhs.uk/Publications/ExecSumms/2012/NeedsTaylor.pdf Regards Caroline Hello All
I am extremely interested in this area of research. I suggest a topic as one that continues to investigate the responses of healthcare professionals to domestic violence. Although there is a growing body of literature in this area, there is still a great deal that is not known.

I am attaching a link to the report of a funded study that my colleagues and I from the University of Dundee, Scotland have recently completed. We are about to embark on another study funded by Wellbeing of Women that investigates the relationship between disability, domestic abuse and access to maternity healthcare.

http://www.cso.scot.nhs.uk/Publications/ExecSumms/2012/NeedsTaylor.pdf

Regards
Caroline

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